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miércoles, 11 de marzo de 2015

THE AUTISTIC SYNDROME AND ITS STIGMA IN OUR SOCIETY

INTRODUCTION

Hi! I am Marta Córdoba Calonge and now it is my turn to post so I will try to do the best I can. I hope you enjoy with it and it serves to make you reflect a little bit.

I choose this topic because I like psychiatrics and many of you like pediatrics and the autistic syndrome is a mental disorder that appears since the childhood so I have tried to agree everyone.

Like the tittle says this article talks about the stigmatization of the autistic syndrome and my intention with it is change your perspectives about it because we are not only doctors who treat diseases; we are people who treat people.

I hope you liked this article and I look forward to read your comments and opinions!


Stigma and Discrimination

Caley and I encourage people with autism to be open about their diagnosis because in our experience there's a degree of protection from bullying that comes with the label, not to mention that openness can help educate others about autism. That said, these benefits come with a steep price because as soon as someone says they're on the autism spectrum, we categorize them and treat them differently. Don't believe me? We'll start off with a story of the stigma I've seen, and then move on to stories of discrimination told by others. Keep in mind as you read the first section that I'm not actually autistic myself.

My discrimination story begins in a place I really wish was surprising – an autism support group. I volunteered there for many years, caring for children during meetings. One day, a new mother came to the group, and brought her autistic son with her. I asked if I could care for him in another room, and was met with a flat out refusal. I was surprised. I’d been doing this successfully for a long time with many parents’ children and had never been met with anything but appreciation. Why now would this change? At the end of the meeting, the mother approached me in embarrassment, apologizing for not having trusted me with her son. Someone had been talking about another girl at the meeting who was autistic, she said – and she’d thought that someone was me.

In short, even this mother of an autistic child was judging me not by my actions, but by her stigmatized view of autistic people. The moment was made all the more painful because the girl the woman mistook me for? She was Caley, my Autistic sister. 

I was the same person as I had always been, but as soon as she thought I was autistic this mother deemed that I was no longer trustworthy. I was being judged not by my actions, but by my label, and that was in a group of parents who are presumably more open and educated about autism than the average person. That's how deep the stigma of autism goes. Up until that point, I’d never really given much thought to the stigma Caley bore, thinking that people would just see her for who she was. It was a shocking moment for me when I realized that Caley had to confront that stigma every single day.

The stigma definitely exists, and we all buy into it to some degree. The only difference is that most non-autistic (neurotypical) people don't realize that they're treating a person negatively because of their autism label. In short, neurotypical people run the risk of using the autism label as justification for treating other people differently, for the worse. 

Being autistic isn't something that someone should have to be ashamed about. It's not something that should be used to discriminate against people, not something that should keep others from disclosing for fear of how they'll be viewed by society.

We may not be able to change society's views on autism (although we can try!), but we can change and monitor our own. So when you interact with someone autistic, keep this stigma in mind. If you're aware of the stigma, you're far less likely to fuel or fall victim to it. 


Judge people by their actions, not their label. 



CONCLUSION

Hi girls! First of all is that I’m so happy you liked the article and the second is thanking you for your comments because they have made me reflect more about. I have found your opinions very different and because it I’m going to say something about each of them.

NURIA: I think the same as you, erroneous values are instilled by society and we, as a doctors, with our knowledge  can and have to change this, first with our children and after with children of our family and friends.

JOANA: I’m with you Joana, many parents, if not almost all, are not prepared to have an autistic child. But you are right, many of these children, fortunately, if are treated from they are little, can have an almost normal development and integrate successfully into society.

DUNIA: It’s true and it’s very sad the fact that people who know better this mental illness are the most prejudices have.

I’m with you when you say that autistic children probably never will live a normal life (from our point of view), but it doesn’t mean that they couldn’t be happy and integrate, they only need a little bit of our help and collaboration.

CLAUDIA: We already know it and in these days the government isn’t going to spend money or time with “things” that doesn’t make benefits, so what can we do? Making us hear.

ANDREA: That you have said is so motivating. When I read your comment I think if we could do it once, we can do it again! And yes, everyone deserves a decent treatment.

ELI: Yes, like Nuria has said, all of wrong thinking about mental illness is because bad or poor information since we are very little, so we must change this view for next generations!

MARIA: I’m glad I surprised you. I think it’s important to do new and different things, not everything consists on study, there are many other things we have to learn that are not in the books.


MERCÈ: Yes, hopefully in a few years, when we are doctors, this problem doesn’t exist, but for this we have to work, it isn’t enough with dream.

Thank you so much to all again for your comments!! 

8 comentarios:

  1. Thank you Marta!
    This article really helps us to see the other side of the diseases. Our course gives much more importance to the study of symptoms and surgical or pharmacological treatments but we are rarely confronted with the full extent that a disease can have. In fact it is amazing the emotional and social implications. This article reminded me a series I saw last summer which portrayed a situation in which a mother of an autistic young woman created her daughter under a tight control and away from society, she considered that by being autistic her daughter was disabled for all. Unfortunately I think it is a common thing, many parents are not prepared to have a child with this syndrome. So I think it is very important that the treatment of autism comprises a multidisciplinary team and family support to help parents learn more about the disease and know the best way to educate their children. It is important to remember that autism manifests itself with varying degrees from child to child, and in some cases if the treatment begins early, the development can be almost equal to that of a healthy child.

    Joana Gonçalves

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  2. Hi Martha, thanks for sharing this information with us and also thanks for thinking about our preferences so we can enjoy it more. I’m glad to tell you that I’m also interested in psychiatric, and I found this article very interesting.
    First of all, I would like to stress that I really dislike the stigma of mental illness in general. I hope that, as doctors, we can contribute our bit to make it disappear.
    I think the reason which society stigmatizes mental illness is the ignorance. When you know someone with this kind of problem like autism, for example, immediately understand everything, but the worst of all is that since we are born, erroneous values are instilled by society, and after that it’s very difficult of change it.
    To finish, I think early treatment is essential, because it helps to have a "normal" life and, unforunatelly, still many parents by ignorance slow to get help for their sons.

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  3. Hi Marta,
    I like your article, and I learned more about this disorder. It’s very interesting and the points that the writer makes make you think.
    I agree whit the writer when she says that people who should be more accepting are sometimes the ones with more prejudices. In this case, the mother who forbade her son from going to the other room because she thought that one of the caretakers was autistic herself and for this reason the mother thought that she couldn’t care for her son. These actions were probably meant to protect her son, but they still show that she had a wrong idea about autism.
    In conclusion, I think that autistic people will probably never live normal but that doesn’t mean that they can’t still be a part of our society.
    Dunia

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  4. Hi Martha!
    Thank you very much for this article and this great opportunity to learn new things about our profession.

    Before reading this article I just knew few things about Autism so it was useful to increase my knowledge about it.
    I love when you said that being autistic isn't something that someone should have to be ashamed about. It's not something that should be used to discriminate against people, not something that should keep others from disclosing for fear of how they'll be viewed by society.
    I totally agree with you that we shouldn't stigmatizes mentall illness like that and also our government should provide help for these kids and their family like centers, research, support but as we know our government prefers to spend our money in less important things.

    Claudia Bosch

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  5. Marta thanks to the article you has posted I have looked more information about the subject because I just knew that these children have trouble to process information and they are characterized by the lack of social interaction and the tendency to isolation. If they already have a certain difficulty to be integrating, why we make it so hard? It seems very important to demystify the stigma that exists towards them and we get achievements such as have been achieved in the case of patients with Down syndrome, who are now integrated into society. It is true that we have more patience and we involve more with them than with people who have non-TEA, but be worth the effort, because everyone has a right to be treated as equals and enjoying the life.

    ANDREA GARCÍA

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  6. Hi Marta! Thank you for this article, it has been quite interesting and different, since most of the time we are focused on diagnosis and treatments.

    This article have remind me how difficult is for psychiatric patients to confront this stigma every day. It´s sad to say, but it actually exists. However, I think that one reason of this might be a lack of education on this area. Most people just know what they watch on movies or in the newspaper; where most of the information are bad aspects and creates like a scary, strange or different image of them. As a result, we just get apart. That´s why I think is very important to diffuse the correct information and use the media to change this stigma.

    It is already difficult for these people to move on with this kind of disease (because symptoms, treatment, feelings, etc.), so what we can at least do is to be open minded and not treat them different. To have a disease doesn´t mean to be strange or been less than others, or even lose your rights. Nowadays there are a huge variety of treatments that permit these patients to have a normal life, as any of us. So let´s begin with ourselves and try to change these wrong thoughts. As the text says, we can´t change the people´s believes, but we can change ours.

    Elisa Salazar

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  7. María Lamana Villegas16 de marzo de 2015 a las 7:45

    Good afternoon, Marta! First of all, apologize me for being so late, I got distracted.

    This article has surprised me, I has been totally different from the others. When we are told to write a post in medicine, we think about an important or interesting disease, its prevention, its diasgnosis, its treatment and its prognosis straightaway. Although, you chose this one originally because it deals with the feelings arised from a stigmatic pathology and about what happens after your diagnosis.

    Some illnesses carry much more consequences than their syntoms, some illnesses go further. The pacient must fight hiscondition and strongly his stigma.
    It shouldn't be accepted, people should remove their prejudices... I'll start changing this situation by mylself.

    María Lamana

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  8. Hi marta! As Maria said, sorry for being late.

    Fist of all, thank you for let us know more about autism. Now that we are studying Psychiatry, this story will help us to remember that a stigma exist. As a future doctors we must work on that, and change the society view of autism.

    I liked so much the part of the article which says that we are dealing with patients but that patients are people so even they have an illness we have to treat them as a person making no differences. I hope in some years we could say that this stigma doesn't exist.

    To sum up, I would like to finish my comment by making a recommendation to all of you: Put oneself in their shoes that will help us to be in a near future great doctors!!!!

    Mercè

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